Browsing by Author "Salom Moreno, Jaime"
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Item Challenges A ecting Access to Health and Social Care Resources and Time Management among Parents of Children with Rett Syndrome: A Qualitative Case Study.(International journal of environmental research and public health, 2020) Güeita Rodriguez, Javier; Famoso Pérez, Pilar; Salom Moreno, Jaime; Carrasco Garrido, Pilar; Pérez Corrales, Jorge; Palacios Ceña, DomingoRare diseases face serious sustainability challenges regarding the distribution of resources geared at health and social needs. Our aim was to describe the barriers experienced by parents of children with Rett Syndrome for accessing care resources. A qualitative case study was conducted among 31 parents of children with Rett syndrome. Data were collected through in-depth interviews, focus groups, researchers’ field notes and parents’ personal documents. A thematic analysis was performed and the Standards for Reporting Qualitative Research (SRQR) guidelines were followed. Three main themes emerged from the data: (a) essential health resources; (b) bureaucracy and social care; and (c) time management constraints. Parents have difficulties accessing appropriate health services for their children. Administrative obstacles exist for accessing public health services, forcing parents to bear the financial cost of specialized care. Time is an essential factor, which conditions the organization of activities for the entire family. Qualitative research offers insight into how parents of children with Rett syndrome experience access to resources and may help improve understanding of how Rett syndrome impacts the lives of both the children and their parentsItem Efectos analgésicos del ejercicio físico en pacientes con dolor crónico musculoesquelético durante el confinamiento por la pandemia COVID-19.(Archivos de Medicina del Deporte, 2020) Salom Moreno, Jaime; Sánchez Jorge, Sandra; Vicente Campos, Davinia; Berlanga, L. A.Introducción: El confinamiento vivido durante la pandemia del COVID-19 en España durante más de dos meses, podría afectar severamente a la condición y calidad de vida de los pacientes que sufren dolor crónico musculoesquelético. Teniendo en cuenta los efectos analgésicos que el ejercicio físico puede generar, gran parte de la población ha realizado ejercicio físico en sus domicilios como mecanismo del control del dolor, durante este periodo. Objetivo: El objetivo de este estudio fue conocer el tipo y la dosis de ejercicio físico realizado, así como la percepción de los pacientes en la reducción del dolor, durante el periodo de confinamiento por el COVID-19. Material y método: Se realizó una encuesta ad hoc a través de Google Forms a 86 pacientes para conocer su estado, el tipo de ejercicio que realizaron y la cantidad de ejercicio, así como si habían percibido una reducción de su dolor durante el periodo de confinamiento. Resultados: La intensidad de dolor disminuyó de forma significativa (p=0,001) cuando se hizo algún tipo de ejercicio físico. El ejercicio de fuerza fue elegido por el 51% de la población de forma exclusiva, y las frecuencias y el tiempo de sesión no fueron diferentes de forma significativa entre los sujetos que sintieron una reducción del dolor y los que no. Conclusión: Una programación de ejercicio físico de 4 días a la semana, durante al menos 50 minutos y con intensidades del 77% de FCmax de ejercicio aeróbico o de fuerza sería recomendable en un paciente con dolor crónico, como estrategia para la reducción del dolor. Los resultados de nuestro estudio no aconsejan, para pacientes con dolor crónico, sesiones de terapia combinada, independientemente de la localización primaria del dolor.Item Effects of Low-Load Exercise on Post-needling Induced Pain After Dry Needling of Active Trigger Point in Individuals with Subacromial Pain Syndrome.(PM&R, 2017) Salom Moreno, Jaime; Jiménez Gómez, Laura; Gómez Ahufinger, Victoria; Palacios Ceña, María; Arias Buría, José Luis; Koppenhaver, Shane L.; Fernández de las Peñas, CésarBackground: Application of dry needling is usually associated to post-needling induced pain. Development of post-needling intervention targeting to reduce this adverse event is needed. Objective: To determine the effectiveness of low-load exercise on reducing post-needling induced-pain after dry needling of active trigger points (TrPs) in the infraspinatus muscle in subacromial pain syndrome.Item Exercises and Dry Needling for Subacromial Pain Syndrome: a Randomized Parallel- Group Trial.(Journal of Pain, 2016) Arias Buría, José Luis; Fernández de las Peñas, César; Palacios Ceña, María; Koppenhaver, Shane L.; Salom Moreno, JaimeThis randomized clinical trial investigated the effectiveness of exercise vs. exercise plus trigger point dry needling (TrP-DN) in subacromial pain syndrome. A randomized parallel-group trial, with 1-year follow-up was conducted. Fifty subjects with subacromial pain syndrome were randomly allocated to receive exercise alone or exercise +TrP-DN. Participants in both groups were asked to perform an exercise program of the rotator cuff muscles twice daily for 5 weeks. Further, patients allocated to the exercise +TrP-DN group also received dry needling to active TrPs in the muscles reproducing shoulder symptoms during the 2nd and 4th sessions. The primary outcome was pain-related disability assessed with the Disabilities of the Arm, Shoulder and Hand (DASH) questionnaire. Secondary outcomes included mean current pain and the worst pain experienced in the shoulder during the previous week. They were assessed at baseline, one week, and 3, 6, and 12 months after the end of treatment. Analysis was by intention to treat with mixed ANCOVA adjusted for baseline outcomes. At 12 months, 47 (94%) patients completed follow-up. Statistically larger improvements (all, P<0.01) in shoulder disability was found for the exercise +TrP-DN group at all follow up periods [post: Δ -20.6 (-23.8 to -17.4); 3 months: Δ -23.2 (-28.3 to -18.1); 6 months: Δ -23.6 (-28.9 to -18.3); 12 months: Δ -13.9 (-17.5 to -10.3). Both groups exhibited similar improvements in shoulder pain outcomes at all follow-up periods. The inclusion of TrP-DN to an exercise program was effective for improving disability in subacromial pain syndrome. No greater improvements in shoulder pain were observed.Item “Living an Obstacle Course”: A Qualitative Study Examining the Experiences of Caregivers of Children with Rett Syndrome.(International journal of environmental of research, 2018) Palacios Ceña, Domingo; Famoso Pérez, Pilar; Salom Moreno, Jaime; Carrasco Garrido, Pilar; Pérez Corrales, Jorge; Paras Bravo, Paula; Güeita Rodriguez, JavierBackground: Rett syndrome has considerable effects on the quality of life of affected children, impairing everyday activities and potentially impacting the life of both the caregivers and the family. Our aim was to explore the experiences of a group of caregivers of children with Rett syndrome with regards to living and caring for their children. Methods: We conducted a qualitative case study to examine how 31 caregivers of children with Rett syndrome perceived living with their children. Data were collected through in-depth interviews, focus groups, researchers’ field notes and caregivers’ personal documents. A thematic analysis was performed following the Consolidated Criteria for Reporting Qualitative Research (COREQ) guideline. Results: The experience of being a caregiver of a child with Rett syndrome was expressed as being akin to an “obstacle course”, and was described via three main themes: (a) looking for answers, with two subthemes identified, namely ‘the first symptoms’, and ‘the need for a diagnosis’; (b) managing day to day life, with the subthemes ‘applying treatments’, and ‘learning to care’; and (c) money matters. Conclusions: Rett syndrome has a considerable impact on the lives of the caregivers involved. The health-care process and the management of economic resources are some of the aspects highlighted by caregivers. These findings have important implications for the planning of support services, health systems and health policies.